A blog for people living with chronic illness to share their truths. Shiny and dull.
This report documents the conditions and interventions used during Folk Fest 2026, our 18th Folk Fest. It is part of an ongoing practice of recording how I navigate complex situations. The goal is not to prescribe a path for others, but to demonstrate that even when conditions are difficult, there are often specific, actionable interventions …
Continue reading "Folk Fest 2026: A Series of Small Adjustments"
"Hold my hand and walk with me. We must break the back of social inequity; We must empower every individual with a disability To live with dignity in an inclusive society." William E. Lightbourne To every person living with a disability, I say to you I see you. It still annoys me beyond belief that people still treat me …
The last week or two in my area, it has done nothing but rain. Although rain is good for my plants and everything is lovely and green, I have had enough of it. When life is passing through a time I am ready to have already passed, I start to think about planning for a …
"My advice to other disabled people would be, to concentrate on things your disability doesn't prevent you from doing well, and don't regret the things it interferes with. Don't be disabled in spirit as well as physically." - Stephen Hawking Usually, people are gracious and helpful. However, the odd time we encounter people who are not. Such was …
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